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Paper Information

Journal:   JOURNAL OF REHABILITATION   SPRING 2009 , Volume 10 , Number 1 (37); Page(s) 42 To 51.
 
Paper: 

FROM DIAGNOSIS TO COPING: A JOURNEY WITH PARENTS IN THE COURSE OF THE DISABILITY OF THEIR CHILDREN

 
 
Author(s):  RAEIS DANA M.*, KAMALI MOHAMMAD, TABATABAEINIA S.M., SHAFAROUDI N.
 
* SOCIAL WELFARE ADMINISTRATION OF SHEMIRANAT
 
Abstract: 

Objective: The aim of this study was to examine parents' experiences, expectations, and needs regarding service providers and their roles in the process of copping with a child with a disability.
Materials & Methods: A qualitative phenomenological method has been designed for this study. Nine parents of children with variety of disabilities including children with cerebral palsy, intellectual disabilities, and autism were purposefully selected and semi-structured in-depth interview were conducted. Interviews records were transcribed and analyzed using Van Manen's method.
Results: Findings were classified in four domains as experienced and perceived by the participants of the study: medical, consoling, rehabilitation and education services. Problems accessing information were due to interpersonal relationship skills, early diagnosis, and frank and honest communication. Consoling are two folds support and education. In rehabilitation promote (progress) of child's function, to possible of observation and comparison with other children with similar situation and attitude of therapists were emerged. Education included: present and future.
Conclusion: Findings indicate that the families are faced with ongoing challenges when receiving professional services. These findings revealed that early diagnosis and intervention, empathic relationships, and appropriate consultation will help the parent’s better cope with their children disabilities and become more positively involved in the care and development of their children with disability.

 
Keyword(s): DISABILITY, PARENTS, COPING, QUALITATIVE RESEARCH, PHENOMENOLOGY
 
References: 
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